May is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday, May 31, 2024! Join us as we come…
Friday, May 31, 2024 WorldwideRun or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…
Sunday, November 3, 2024 8:00 am - 10:00 am New York, NYWe are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.
NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.
At AFBS, we’re committed to finding treatments for Nemaline Myopathy (NM) through a diverse array of research approaches. From gene therapy to small molecules and disease management strategies, we’re investing in initiatives that hold the most promise for our community and we’re thrilled to share an exciting update on a groundbreaking Nemaline Myopathy exosuit research…
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The AFBS community is filled with inspiring stories of resilience and strength. Today, we shine a light on Erica Redinbo, a mother running the 2024 Boston Marathon in honor of her daughter Kinsley, who bravely battled Nemaline Myopathy (NM). Erica describes Kinsley as the “strongest person I’ve ever known,” even though NM took her physical…
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