Advancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.

Upcoming Events

  • Team AFBS NYC Marathon Application Deadline

    Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…

    Sunday, March 31, 2024 New York, NY
  • 2024 Nemaline Myopathy Awareness Day

    May is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday, May 31, 2024! Join us as we come…

    Friday, May 31, 2024 Worldwide
  • 2024 TCS New York City Marathon

    Run or Walk 26.2 Miles For Nemaline Myopathy Research We are proud to be selected as an official charity partner of the 2024 TCS New…

    Sunday, November 3, 2024 8:00 am - 10:00 am New York, NY
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FOR OUR COMMUNITY

We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.

You Can Make A Difference

Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness. 

NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.

Our Impact

0 % of your donation is invested in Nemaline Myopathy research
0 research studies funded to date
0 + people with Nemaline Myopathy registered in CMDIR
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On the Blog

Building Strength: Promising Developments in Gene Therapy for Nemaline Myopathy

There’s been exciting progress on a new approach treating Nemaline Myopathy (NM), the rare muscle disorder that causes weakness and low muscle tone. While researchers have identified twelve different faulty genes that cause NM and prevent muscles from working properly (ACTA1, NEB, TPM2, TPM3, KBTBD13, CFL2, KLHL40, KLHL41, LMOD3, MYPN, TNNT1, and TNNT3, with the…

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