At AFBS, we’re committed to finding treatments for Nemaline Myopathy (NM) through a diverse array of research approaches. From gene therapy to small molecules and disease management strategies, we’re investing in initiatives that hold the most promise for our community and we’re thrilled to share an exciting update on a groundbreaking Nemaline Myopathy exosuit research…
Read MoreAdvancing Nemaline Myopathy research. Supporting our community. We are strong where it matters.
Upcoming Events
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Virtual Meetup
You’re Invited! Register now to join the first of our two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together to connect,…
Saturday, May 18, 2024 9:00 am - 11:00 am Online -
Virtual Meetup
You’re Invited! Register now to join the second in our series of two virtual meetups during Nemaline Myopathy Awareness Month, where members of the NM community can come together…
Tuesday, May 21, 2024 5:00 pm - 7:00 pm Online -
2024 Nemaline Myopathy Awareness Day
May is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday, May 31, 2024! Join us as we come…
Friday, May 31, 2024 Worldwide
FOR OUR COMMUNITY
We are dedicated to our mission of finding treatments for Nemaline Myopathy, while providing support and resources to the Nemaline Myopathy community.
You Can Make A Difference
Nemaline Myopathy (NM) is a rare muscle disease that affects all the skeletal muscles in the body, causing muscle weakness.
NM varies greatly in severity, from mild symptoms to premature mortality. It does not affect brain development or cognitive function. Currently no Nemaline Myopathy treatments or disease modifying therapies exist, but A Foundation Building Strength is working aggressively to change this. Learn More.
Our Impact
On the Blog
Running for Kinsley: Erica Redinbo is Putting in the Miles for a Brighter Future for Those with Nemaline Myopathy
The AFBS community is filled with inspiring stories of resilience and strength. Today, we shine a light on Erica Redinbo, a mother running the 2024 Boston Marathon in honor of her daughter Kinsley, who bravely battled Nemaline Myopathy (NM). Erica describes Kinsley as the “strongest person I’ve ever known,” even though NM took her physical…
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